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Review of the international evidence on support for unpaid carers

Authors:

Nicola Brimblecombe ,

London School of Economics and Political Science, GB
About Nicola
Assistant Professorial Research Fellow, Personal Social Services Research Unit
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Jose-Luis Fernandez,

London School of Economics and Political Science, GB
About Jose-Luis
Associate Professorial Research Fellow and Deputy Director, Personal Social Services Research Unit
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Martin Knapp,

London School of Economics and Political Science, GB
About Martin
Director and Professor of Social Policy, Personal Social Services Research Unit
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Amritpal Rehill,

London School of Economics and Political Science, GB
About Amritpal
Research Officer, Personal Social Services Research Unit
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Raphael Wittenberg

London School of Economics and Political Science, GB
About Raphael
Associate Professorial Research Fellow, Personal Social Services Research Unit
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Abstract

Globally and locally, ongoing demographic, sociocultural and economic changes have implications for unpaid carers. For those who provide unpaid care, particularly at higher intensities, there is substantial evidence of negative effects on employment, health and wellbeing, with associated individual and societal costs. For these reasons, there is increasing policy emphasis on supporting unpaid care in the UK, mirrored, and in some cases exceeded, internationally.

This paper aims to provide an overview of the international evidence on effective support for unpaid carers. This evidence synthesis finds an extensive literature on a wide range of potentially effective interventions to support unpaid carers under the broad categories of indirect support (services for the care-recipient), direct support (such as psychological therapies), work conditions, and combinations of these. However, there are significant gaps in the evidence base with regards to interventions, outcomes and types of caring situation studied, with a dearth of evidence on cost-effectiveness and few evaluations of key recent policy initiatives. Evidence is strongest and most consistent for formal care services for people with care needs (so-called ‘replacement’ or ‘substitution’ care); flexible working conditions; psychological therapy, training and education interventions; and support groups. In many cases it may be that a combination of interventions is most effective. These findings have implications for social care policy and practice which aims to support carers, particularly in the context of the changing landscape of global macro-level processes and recent policy, legislative and funding changes for local authority and voluntary sector providers of support and services for carers in the UK.

How to Cite: Brimblecombe, N., Fernandez, J.-L., Knapp, M., Rehill, A. and Wittenberg, R., 2018. Review of the international evidence on support for unpaid carers. Journal of Long-Term Care, pp.25–40.
Published on 01 Sep 2018.
Peer Reviewed

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